Monday, September 28, 2015

Until We Meet Again....


Today was bittersweet.  To quote my favorite Big Head Todd and the Monsters song "It's bittersweet more sweet than bitter, Bitter than sweet, It's a bittersweet surrender"

I have mentioned before that I have been going to an infertility support group that I found through Resolve.org.  I almost cannot put into words how helpful this group has been for me.  Infertility often makes you feel isolated.  You feel like you are suffering through an almost insurmountable difficulty all alone.  Because so few of us are open about our infertility, most of us don't realize that so many others out there are suffering too.

I am lucky that I flipped through a family building options magazine in my RE's office and saw an ad by Resolve.org.  And that I checked out their website and found that there are support groups in my area.  And especially that I put aside my fears and went to a meeting.  That was a pivotal moment for me.

The group was wonderful.  Everyone was kind and supportive.  As we shared our stories I felt a kinship with these men and women.  We were all suffering, and we were all trying hard not to give up.

As beautiful of blessing that a child is, and not matter great the dream is to have a child, sometimes the journey to having one can seem too hard, too painful, and too futile.  For many, infertility is resolved by the decision to live child free.

I have at times thought of giving up.  I have thought that if I was meant to have a child that I would have one.  That maybe I am tempting fate and the wrath of the gods by trying to sneak in a child through alternative means.

Listening to the stories of others who were also struggling with infertility gave me hope and gave me to the courage to keep going on my journey.

It was very hard for me to have to leave that support behind once we had a BFP.

Resolve does encourage those who attend their groups to come back to make their pregnancy announcement.  The thought is that we all need good news once in a while.  We need to know that it can work.  We need to know that our struggles may not be in vain.

I was nervous about making my announcement.  I worried that it would be hard for some to hear.  I have cried tears of agony at my empty womb when an ultrasound picture pops up on Facebook, or when I hear yet another pregnancy announcement.  I did not want to be the source of that horrible pain for someone else.

But it turns out that I wasn't.  Several of us have been attending the group for a while.  Each month we hope that we won't see someone at group - that it finally worked out for them.  When we see them month after month we know the sad truth. 

When I went through my story I choked up describing my losses.  It sometimes surprises me that even though now we are very likely finally realizing our dream of having a child that my losses still hurt, and hurt just as much as they ever did.

But the ending to my story finally changed.

We finally had a BFP.....a BFP that was at 18 weeks.....and had gone through prenatal testing that kept coming back good....a BFP that may actually be a real baby someday.

Everyone was happy for me.  They shared that my story gave them hope.  That is a beautiful gift that I never thought I would be able to give.  A bittersweet gift.

I hope that I see all of the members of my group again someday.....maybe at the hospital with their newborn, or at daycare or school.  I hope to see them holding the child that they so desperately want.  I see us looking at each other, realizing how we know one another, looking at each others children and giving one another a knowing smile.

Until we meet again.....

 

Sunday, September 20, 2015

An Unexpected Benefit of Expecting Via Gestational Carrier

 Is that I can drink this while "pregnant"


We spent a long weekend touring San Francisco, Napa and Sonoma with friends.  It was a much needed break/stress reliever.  While expecting via gestational carrier is a happy event, it is also a very stressful one at times.  I have been very grateful that I can still have my wine :)



Sunday, September 13, 2015

PALS - Pregnancy After Loss Support



I have been struggling with mixed emotions throughout this pregnancy.  I have been terrified that we were going to lose the baby, or even worse, that something was horribly wrong.  That has been mixed with sadness, since this pregnancy sometimes makes me think of the pregnancies that I have lost.  Every now and again, a little bit of anticipation and happiness pops up.  But that is quickly washed over with fear, sadness and sometimes even guilt.  Guilt that this baby may make it and there were ones who did not.

It has been hard to say the least.

What has also been very hard is that I feel very misunderstood.  For most of the population, a positive pregnancy test equals a baby.  And for most of the population, that positive pregnancy test came without months or even years of trying, without medications, procedures or even third parties.  For many it was even a complete surprise.  For most of the population, pregnancy is a time of joy, and they don't seem to understand how anyone would not also be joyful.

For most women who have suffered a pregnancy loss, their partner also suffered that loss.  So, while people (and often the sexes) process loss differently, the couple is at least processing together.

True, Mark and I suffered a failed transfer and a chemical pregnancy together.  But those happened half a world away and via a gestational carrier.  For Mark they were disappointments, for me they were losses.

The two pregnancies that I myself lost happened 14 and 15 years ago, with another partner and even in a different state.  Mark hasn't gotten the thrill of a positive pregnancy test, only to start bleeding a few weeks later.  To then start having horrific cramps and passing big clumps of things that you knew once were a baby.  To have to go to the doctor to make sure that everything actually did pass and that you don't need a procedure.  To have seen a baby moving on an ultrasound, that later never was.

We have had very different experiences.

Mark has tried to be supportive despite not completely understanding my feelings.  He has been doing a great job, but I really still needed more support.  Thankfully I found out about PALS - Pregnancy After Loss Support, and even more importantly, found a local support group through them.  They have been wonderful so far and I have learned some very important things:

1. My feelings are normal for someone who has experienced pregnancy loss.
2. I have not fully grieved my prior losses.
3. I need to work through my grief and my fear.
4. My grief and fear will never completely go away, but it will be less often and less hard if I work on it now.

I have rationalized my losses for so long, telling myself that "It was for the best".  It has been hard, very hard, but I have been working past the rationalization.  I had never named my angel babies.  I think that I probably didn't see the point - why name a baby that never was?  But, Daniel, Marilyn, Gavin and Grace deserve to have names.  They were are real, even if it was only for a few months, weeks or days.  When our little one is born, they will not be alone, they will have four siblings that  they will meet someday in Heaven. 

This is hard for me to write, or even think about.  I don't know if I ever had a great relationship with God, but it definitely changed after my first miscarriage.  I have been so angry that he would give me a miracle pregnancy....only to take it away.  To give me hope, after hope, after hope, only to take it away.  I know that I shouldn't be.  I have to remember that even through sometimes God may seem careless, that there is a plan.  Maybe our little one needed to have these angel babies to watch over him/her.  That my angel babies are so that Baby S someday will be.  I have to believe that is the plan.

I have to keep working through my pain, so that I can be fully here once Baby S is here.  I will continue to go to my support group and work with our fantastic counselor.  I am very lucky to have found their support.  I will also work on a way to memorialize my angel babies - something very special for my little ones that were too beautiful for here.

Daniel, Marilyn, Gavin and Grace, I will hold you in my heart until I hold you in Heaven.




Friday, September 4, 2015

And I thought Fertility Treatments Were Expensive.....


Now that we've ventured into the second trimester, I felt more comfortable with looking into child care for Baby S (I also think I need transition names since Maybe Baby doesn't feel appropriate anymore since he/she is becoming more and more real with every passing week).

The pregnancy checklists that I have seen say that right now is a good time to start looking.  I have heard, however, that in the Twin Cities, daycare is at a premium and maybe we should have starting looking sooner.  Turns out we may be a little late to the party.

Mark talked to one of his clients who owns several daycare centers in southern Minnesota (unfortunately none in the Metro) to get some pointers from an expert.  What she said generally echoed what Mark and I had already talked about ourselves.  In-Home vs. Center.  Each has its own pros and cons.  Centers are more expensive, and can sometimes feel impersonal.  In-Home is less expensive and is VERY personal.  Some of our friends and coworkers have had not-so-great experiences with in-home, and we liked the convenience and the educational programs that many centers offer.

We decided on 3 centers that are close to our house.  It was recommended to us to "sneak attack" - just show up without an appointment so that you get a feel for what the place is really like.  That gets a little complicated when each center has a code to get in to keep out the creepers.  Each place was very accommodating and each had its own pros and cons.  One I liked more than the others, one all of the kids seemed very happy, one they separated the kids in rooms by age (much more than the others), keeping each group small, one just felt "right".  To the complete shock of my husband I whipped out the checkbook and put down our deposit.

Here's why I said we might be late to the party.  The center has an opening next year, but not until May 1st.  We need an earlier opening.  Unfortunately since I will not be giving birth, I do no qualify for disability, meaning that my leave is unpaid unless I use vacation and whatever my company offers for family leave (six weeks).  Also unfortunate is that we spent all of our readily accessible savings just creating Baby S, so unpaid leave isn't an option.  Thankfully we get a week of backup daycare, the center may be able to accommodate us a little earlier, and both sets of parents would be able to fill in some time.  Covered, but a lot of coordinating.

Daycare favors the fertile.  Apparently we should have booked an opening the minute we found out that we were pregnant, or even when we decided to start trying.  I think I speak for the 1 in 8 couples who experiences infertility when I say that it RIDICULOUS!

Also RIDICULOUS is how much daycare is going to cost us.  I thought just creating Baby S was expensive.....now I know why people with kids are always broke.

http://childcareawaremn.org/families/paying-for-child-care/child-care-costs-in-minnesota

Average Weekly Cost of Child Care

Below are some average ranges of weekly child care costs in Minnesota as of June 2015. Rates for part-time and drop-in care may be higher than those listed below.

Metro Centers Family Child Care
Infant $320.99 $178.86
Toddler $274.06 $169.45
Preschool $242.49 $160.45
School-Age $198.05 $140.60
Out state Centers Family Child Care
Infant $199.34 $133.86
Toddler $179.88 $127.69
Preschool $165.51 $123.13
School-Age $143.78 $112.50
Statewide Centers Family Child Care
Infant $283.93 $153.65
Toddler $245.70 $146.14
Preschool $218.83 $139.61
School-Age $181.59 $125.48

Thursday, August 27, 2015

A Lactation Consultation


Just as I hope that my blog may in some way help others, I have been greatly helped by other peoples blogs.  One thing that I found out through another intended mother's blog is that just because you did not give birth to your child, you may still be able to breastfeed him/her.

What did you say?  What sorcery is this?

Not exactly sorcery. It turns out that any woman (with breasts) may be able to breastfeed regardless of whether or not she has given birth, or even has a uterus or ovaries.  Lactation is actually governed by pituitary hormones, not ovarian hormones.  It should be noted that while nearly every woman can do it, it is not necessarily easy or quick, and is generally more successful if you have previously nursed or been pregnant.

When we started in this process, I had been asked by a few people if I intended to breastfeed.  I thought that was a funny question mainly because I had not really considered it.  I guess that I knew that I actually COULD.  I mean, even men can lactate.  But I hadn't really thought that I WOULD.

I think that I just figured that we would bottle feed.  Most adoptive mothers bottle feed.  Millions of children have been bottle fed over the years and virtually all of them have turned out just fine.

I think that I also feared trying to induce lactation since I knew that it was tricky at best.  I thought it would be just another thing that could (and probably would) go wrong.

But as Maybe Baby started to hang in there week after week, and the tests and ultrasounds started to come back OK, some of my fears started to subside and I started thinking that Maybe Baby may actually become a real baby.  Whoa!  This is a new concept.

As I started thinking in terms of an actual vs. theoretical baby, I started thinking about what we would do when the baby comes.  I started reading other IMs blogs about the importance of infant bonding and how it is even more important in an adoption or surrogacy.  Of how important skin to skin contact is, and breastfeeding.  Wait.....breastfeeding.

Breastfeeding is not just about getting nutrients to your baby.  It is also very much about bonding.  I read that it is not important if you make enough milk yourself or if you have to supplement, it is about the time together and the skin to skin contact.  I read blog after blog and story after story of how amazing it was to be able to connect that way with their baby, of how it in some ways made up for the loss of not being able to birth their own child, of how it made them feel more like a mother, and of how it gave them a way to get ready for their babies arrival in the absence of being pregnant.  I read that it was not easy, but that the juice was worth the squeeze.

I decided that it was worth giving it the old college try.

As recommended by everything that I've read, I decided to consult with a professional - a lactation consultant.  I have done a decent amount of research on this, so I was able to jump right into recommendations and protocols with her during our visit.  Since I have a good amount of time before the birth, since it is (arguably) the most successful protocol for induced lactation, since Maybe Baby is essentially the product of a metric crap ton of hormones, medications and other supplements, and taking more hormones, medications and other supplements does not phase me in the least at this point, I am interested in using the Newman-Goldfarb Protocol for inducing lactation.

After talking through my health and pregnancy history and the protocols, my lactation consultant had some good news and some bad news.

The good news:  milk ducts grow rapidly primarily during the first trimester of pregnancy (that is why your boobs get enormous and terribly sore, and why that soreness gets better as you enter the second trimester).  I have been pregnant before, and my second pregnancy almost made it past the first trimester.  I was pregnant long enough for my boobs to get enormous and terribly sore - meaning that I probably went through some milk duct formation, meaning that I will probably be more successful in inducing lactation than someone who has never been pregnant.

The bad news: the magic ingredient in the Newman-Goldfarb protocol is a Domperidone - a drug that is given to relieve nausea and vomiting.  A drug whose major side effect is that it induces lactation because it increases decreases the body's release of dopamine which in turn increases prolactin, which in turn causes lactation.  It is probably used more often for its "off label" use than it is for its primary intent.  Domperidone is not FDA approved - meaning that it is nearly impossible and possibly illegal to get in the US.  There is a legal drug that can also increase lactation called  Metoclopramide, but it has some pretty nasty side effects (much more nasty than Domperidone) and can also be passed through breast milk - making it not really a suitable alternative.  Also, to add insult to serious injury, my insurance may not cover a breast pump since I will not have given birth.  I will need a hospital grade pump for this to work and those are NOT cheap.  Since those cost over $2,000 to buy new, I would need to looking into renting one, or buying a gently used/refurbished model.

I left feeling very defeated and like the visit may have just been a waste of time.

I am now trying to focus on the positives.  While my consultant had heard of using domperidone (and could not and did not recommend it) and the herbs that we discussed (fenugreek, blessed thistle and goat's rue), she had not heard about adding the birth control pill before.  This really intrigued her.  Taking the birth control pill nonstop for a minimum of two months (four or more is even better) essentially tricks the body into thinking that it is pregnant.  The estrogen and progesterone in the birth control pill mimic the levels produced in pregnancy and can help to build milk ducts and breast tissue.  Stopping the birth control pill and then pumping, should cause a rapid decrease in the serum progesterone level while causing an increase in the serum prolactin level. This process attempts to mimic what happens after a normal pregnancy and birth.

My consultant thought that this hormonal "push" may be the key to successfully inducing lactation.  When just beginning to pump, or pump with the addition of herbs, the process can and often does work, it just takes a long time.  She was very interested in pursuing this method and hoped that it could be successful for other patients.  In addition to the BCP, goat's rue is often recommended in the "building" phase as it tends to act like estrogen.  It can be effective taken on its own, but tends to be more effective when taken in conjunction with progesterone.

About 8 weeks before Maybe Baby's due date I should stop the BCP but keep taking the goat's rue and over the nest two weeks begin pumping working up to pumping 8 times per day and 20 minutes each session.  Once I start pumping, I should start taking fenugreek and blessed thistle (alfalfa, fennel, saw palmetto, and shatavari are also recommended, but not as highly as fenugreek and blessed thistle).  I should try to eat oatmeal for breakfast at least 3 times a week - many mothers on the protocols have noticed a significant increase in their milk supplies when they began to add oatmeal to their diets regularly.  I also need to drink at least 6 - 8 glasses of water a day if possible and keep my caffeine to a low level.

I say low level since stopping completely could mean harm to those around me and low levels have not been found to be harmful to babies via breast milk.

When I am ready to start pumping, I will visit my consultant again and she will show me how to use the pump and map out a pumping schedule for me to follow.

After pumping for a while, my milk supply should begin to arrive. It will begin with a few clear drops which become more frequent and more opaque and whiter in color.  These drops will turn into spray which will eventually turn into a steady stream of breast milk. It may take a few days, a week, or two, or more for the milk supply to come in. Everyone responds differently.

I know that this sounds like a huge commitment.  It is.

But, it is a way for me to get ready for Maybe Baby's coming, a way for me to feel like more of a "normal" mother, and most importantly, a very special way for us to enhance our bond.

And that, my friends, will be worth it.

Friday, August 21, 2015

Everyone Has Something (Carrier Screening Results)


We received the results of our genetic testing.  As suspected, we each have something......but luckily we both have different things.

Mark's results:

Positive: Carrier

Salla disease

Teri not found to be a carrier. Mark is a carrier. Risk of affected child: 1 in 2,000
The most common form of Salla disease causes a slow, progressive decline in motor and intellectual abilities, with symptoms beginning in the first year of life. There is no effective treatment available. Adults with the disease are profoundly intellectually disabled, but live normal lifespans. Another form of the disease is more severe, causing death in early childhood. Learn More

This is a pretty terrible and also very rare disease.  This is the first time our genetic counselor has even seem someone be a carrier. It is mostly found in northern Finland - there are only 30 documented cases outside of Finland.  (Mark must have some Finnish that he didn't know about?)

Luckily carriers are only that - they do not typically experience any symptoms.  Also lucky is the fact that I am not a carrier so our risk of passing to our children is very, very, very low.

My results:

Positive: Carrier At Risk for Symptoms

Pseudocholinesterase deficiency

Teri is a carrier. Mark not found to be a carrier. Risk of affected child: 1 in 640
Pseudocholinesterase deficiency causes sensitivity to particular forms of surgical anesthesia. After receiving these drugs, people may experience a longer than normal period of breathing paralysis, but medical teams are typically equipped to handle such an event. The condition does not cause any other symptoms. Learn More

This is more common than Salla Disease, but not exactly super common either.  It is more commonly found in Native Americans (possibly from me being 1/16th Mesquaki?) and the Persian Jewish community.

Luckily this isn't really that bad - basically it takes you longer than normal to fully come out from anesthesia - and Mark is not also a carrier.

Not so lucky is that carriers can also experience symptoms, although not as severely as those who have the condition.  It may have taken me a bit longer to come out from anesthesia but probably so little time that it never became a concern.

So good news.  So far things are going well and we now have a few less things to worry about.

Friday, August 14, 2015

The Many Faces of Maybe Baby


We arose early to get to the Perinatal Specialist's office by 7:30 am.  With the many doctor appointments that our GC has had lately an early appointment meant less of an issue with work.  Normally I would push for a little later appointment (I am not a morning person, at all) but we have also had a few appointments ourselves.  I have not yet announced at work and am running out of plausible reasons to have so many doctor appointments, so one early enough that I didn't even have to miss work was actually a blessing.

As a mentioned in an earlier post, I have agreed to postpone, and possibly even forego, invasive prenatal tests if our noninvasive prenatal screening does not indicate any potential issues.  Today's noninvasive prenatal screening was the nuchal translucency scan which is a detailed ultrasound that measures the nuchal fold thickness.  Increased thickness measurements are also associated with Downs Syndrome and some other chromosomal birth defects and also congenital heart defects.

The procedure for the NT scan is pretty much the same as for any other pregnancy ultrasound.  Our GC needed to have a fairly full bladder, have some cold goo rubbed on her belly, and endure some pressing on her fairly full bladder - not too bad.  The technician moved the screen so that we could all see and went to work.

Maybe Baby is a pretty active baby.  MB kept moving around making it a little hard for the technician to get the measurements and pictures that she wanted.  Our GC cannot yet feel MB's movements but is dreading the later stages of pregnancy if MB is going to be as active as we think MB may be....

Despite MBs in utero acrobatics, the technician was able to take a number of cross-sectional views and pictures.  She seemed very thorough.  She showed us that the top of MBs head and that you can see both halves of the brain developing.  She pointed out MBs heart and stomach.  She said that the placenta was at the top of the uterus (our GC thought to ask about that - good call).  We got to see MB moving both arms and both legs.  Right now MB measures 2 inches from top of  head to rump and has a heartrate of 167 bpm.  The technician can't give us the official OK, but so far things seem to look good.

We also got to take home a cute view of what look to be a nice long pair of legs.....